Impact of COVID-19 on mental health and well-being of caregivers and families of autistic people

What’s this project about?

Reports have indicated that caregivers and families of autistic people have experienced considerable stress as a result of the COVID-19 pandemic.

How will we go about doing this project?

We are conducting a rapid synthesis of the literature to help us understand what has been documented regarding the impact of COVID-19 on the mental health well-being of caregivers and families of autistic people, and to identify supportive mental health and well-being programs that have emerged as a result.

What will we do with our research findings?

An initial report will be submitted to CIHR by the end of June 2020. We will continue to work on the project with our multidisciplinary team to create and tailor accessible products to communicate our findings to the autism community (i.e., blog posts, podcasts, videos, infographics, etc.).

What is the next step?

We are asking service providers, researchers, clinicians, and members of the autism community to help us identify key literature (i.e., publications, reports, guidelines, newspaper articles) that refers to the mental health and well-being of caregivers and families of autistic people during the pandemic.

Please email Dr. Vivian Lee at leev9@yorku.ca by June 12, 2020, with details so we can include the resource in our review.

Find a PDF version of our request here.


This project is funded by Canadian Institutes of Health Research.